Mobilising Religious Leaders to Join the Fight Against HIV/AIDS: Results of a Qualitative Research from Egypt

By Ahmed R. A. Ragab, Mervat Mahmoud and G.I. Serour

Background
The adult prevalence rate for HIV in the Middle East and North Africa reached 0.3% in 2003, equal to that of Western Europe. However, while 35,000 new cases occurred in Western Europe in 2003, 55,000 new cases were estimated to have occurred in the Middle East and North Africa region during the same period. The estimated cases in 2004 came to 92,000.

Similarly, the estimated number of deaths resulting from AIDS in 2003 was 45,000 in the region compared to only 3000 in Western Europe. These figures show the relative containment of the epidemic in Western Europe, while the same epidemic is rapidly expanding in the Middle East and North Africa region [1]

Strong taboos attached to HIV/AIDS in the Middle East and North Africa make it harder to measure the scope of the problem and to plan accordingly. Extreme stigma not only marginalizes those who are HIV-positive but also inhibits people from going for tests in the first place [2,3].

It is commonly believed that the region’s conservative socio-cultural norms and the relatively good health expenditures in some countries have helped to limit HIV spread.

Rationale
The difficulty in establishing effective HIV/AIDS programmes comes from a lack of openness to sexuality issues in many of the Muslim countries. There is also the added factor of the attitude to illness and death. As a result of deep-rooted cultural constructs, these are considered taboo subject areas.

We also find that religion is a very important factor in Egyptian history, in shaping the attitudes and the behaviours of large sections of the population. Religious leaders are the gate keepers for many social and cultural issues. The role of religious leaders is not restricted only to the call for prayer, fasting, almsgiving, pilgrimage and other religious commandments and juristic regulations; but this role extends to include other social obligations such as mobilising people for various medical, social, cultural and religious activities.
Recognising the roles that religious leaders play; and involving them in HIV and AIDS programmes will lead to greater success.

Most of the programmes that involve religious leaders operate on the premise that religious leaders only need information to become effective partners in the fight against AIDS. There has been little attempt to understand what they can contribute and what their specific needs are. This study examined what the religious leaders can contribute to the success of HIV/AIDS programmes including the provision of care for PLWHA. The research also sought to establish what religious leaders need in order to fulfil these tasks.

Research Objectives
The research aimed to: (1) Find out what religious leaders know about HIV/AIDS (2) Examine the attitude of religious leaders to PLWHA (3) Find out what religious leaders can contribute to HIV/AIDS programmes; including care and support for PLWHA (4) ascertain the needs of the religious leaders in order to engage them in the fight against HIV/AIDS.

Methodology:

The research was conducted in one of the Upper Egypt Governorates (Beni-Suif) and in one Governorate in Lower Egypt (El-Sharkia). This was a cross-sectional analytical study, utilising two types of qualitative research - focus group discussions (FGDs) for different target groups and in-depth interviews with 12 religious Leaders.

Group Selection
Based on the objectives of the study, the groups were selected in collaboration with the local authorities and with existing non-governmental organisations (NGOs).

Focus Group Guide:
The questions were arranged in a natural, logical sequence and were memorized by the moderator. Although the first part of the focus group guide was fixed for all groups, the second part was flexible so that it could be adapted to suit the different groups.

In-Depth Interviews were conducted using a carefully designed questionnaire. This added more depth to the study findings.

Quality Control
The measures that were taken to improve the reliability of the research findings included the following: The use of combined focus groups and in-depth interview techniques; Repeat questions were incorporated in both the focus groups and in-depth interviews and were used to check the consistency of response. Human factors like fatigue, mental capacity, and limited hours, were adequately considered.

Research Findings
The findings of both focus group discussion and the in-depth interviews were analysed as follows:

Knowledge about HIV/AIDS: the religious leaders displayed varying knowledge levels regarding preventive measures and the modes of transmission of HIV and AIDS. Apparently, many were influenced by HIV and AIDS programmes that they had attended in the past. While those who attended a previous programme (seminar or workshop) had good knowledge, the others had many misconceptions and wrong ideas.

"HIV/AIDS is transmitted in situations of adultery and among homosexuals or lesbians; or when one has sex with a menstruating woman or with an animal" (A religious leader who never attended a sensitisation programme, Upper Egypt).

"HIV/AIDS is transmitted through an infected mother to child. It could also be transmitted while having sex with an infected person who is normal [meaning heterosexual], HIV can be transmitted if one is injecting drugs and sharing needles in a group where one of the members is infected. It can also be transmitted through a blood transfusion if the blood was taken from an infected person" (A religious leader who had a attended a previous sensitization programme).

Very few of the respondents showed a severe lack of information:
"HIV/AIDS can be transmitted through sneezing, shaking hands with an infected person, insects bites, having anal sex, sex with animals and sex with menstruating women" (A religious leader from Upper Egypt).

The common believe that it is a disease without treatment was obvious. The group affirmed that infected people are dead people. "it is the most dangerous disease in this current age; people who are infected are going to die in a short period"

One religious leader from Lower Egypt suggested that "This disease is Allah’s punishment for those adulterers, sinners and homosexuals".

Prevention of HIV: In spite of the different modes of transmission that was mentioned, when the groups members were asked about prevention issues, the following were some of the repeated answers: "Avoiding adultery is the way", "adhering to Allah's teaching", "avoiding homosexuality", "avoiding sexual intercourse through any route other than vaginal intercourse”, "Avoiding sex with menstruating women".

A religious leader from Upper Egypt explained further: "It is not only avoiding these behaviours that is important; but also avoiding what may lead or expose one to these behaviours such as mixing between boys and girls, a meeting in private between a man and a strange woman [who is not his wife or sister], and other things that lead to adultery"

Very few suggested using sterilized dental instruments and only one person suggested the use of disposable injection needles. However, there was a consensus on the need for a special form of sexuality education that is based on religious teachings. They also stressed the need to avoid sex outside marriage. This education, as the groups observed, should be delivered in a sensitive and courteous way. One religious leader gave the following example.

"At the time of the Prophet (PBUH), a young man came to him to ask for permission to commit adultery! The prophet’s companions were surprised and wanted to beat the young man up but the Prophet (PBUH) stopped them. He asked the young man: ‘Would you accept this [committing adultery] for your mother? The young man said ‘No’. Then the Prophet (PBUH) asked him: Do you accept this for your sister? The man said ‘No’. The Prophet continued asking him about all his close relatives and the answer was a constant ‘no’. Then, the Prophet told him ‘and also other Muslims do not accept it for their wives’. The young man went very convinced, and as we notice the Prophet (PBUH) did not punish the young man”.

Condom Rejected: Probing technique was utilised on the issue of condom use. There was a general rejection of the condom. The religious leaders affirmed that this method could open the way to adultery and this is unacceptable by Islam. The only acceptable way condom can be used, as they affirmed, is between a husband and wife; and this is also on the condition that there is a mutual agreement between the husband and wife.

Other prevention strategies cited included: mass screening of all travellers to Egypt (including the nationals); screening of those who are entering the labour force (with special emphasis on those who are going to work close to food products and those who are barbers and dentists). Screening of all those who are admitted to the universities, and making the HIV test a compulsory test before marriage were also suggested

Attitude Towards People Living with HIV/AIDS: The religious leaders affirmed that human life is highly valued in Islam; it is considered a gift from Allah and it was also pointed out that Holy Prophet Mohammed, (PBUH), stressed the importance of health at many times.

One religious leader from Upper Egypt affirmed that "Our bodies are on trust from Allah and must be returned one day. We will be asked, among other things, how we looked after it". Therefore, he continued "we should avoid any act which will harm our health". He further suggested, “we should segregate/isolate those people [PLWHA], so we can avoid the infections".

However the majority rejected the idea of isolation because: "Islam is a religion that is full of compassion, love and mercy. The Prophet Muhammad (PBUH) stated that: “You will not enter into paradise until you believe, and you will not believe until you love one another”, a religious leader from Upper Egypt affirmed and suggested instead that "We should treat those people with mercy”. However, he continued, “we should be careful, as the prophet (PBUH) acknowledged the need to avoid infection".

A religious leader from Lower Egypt quoted this Hadith "The Prophet (PBUH) asked us to “escape from Plague as though you are escaping from a Lion." Another religious leader from Lower Egypt indicated "in Islam, if you are in an area where there is an outbreak of the Plague, you should not leave it for fear of infection.”


Table 1. How To Prevent Mother To Child Transmission  
  P1: Transmission to the children should be prevented; doctors should tell us how we can ensure that
P2: PLWHA should not marry and those who are married should avoid pregnancy
P3: In this case, condoms can be used
P4: What about women who are pregnant already?
P5: In this case abortion could be an option
P6: abortion cannot be allowed after 120 days
P7: no, abortion is allowed only before 40 days
P8: can we know for sure that the coming child will be infected?
P9: we need full medical information on this and other issues in order to make our Fatwa (rule).
 

A religious leader from Upper Egypt suggested that there was a strong feeling among the religious leaders that PLWHA should be treated with mercy. "It is enough the suffering that they have. The Prophet said: “Allah shows compassion only to those of his servants who are compassionate.”

Some of the religious leaders expressed the fear that the stigma surrounding PLWHA could force them to seek revenge on society by spreading the virus.

Prevention of Mother to Child Transmission: One major concern which was expressed by many of the participants was how to prevent mother to child transmission of the virus. See Table 1 for excerpts from a FGD held in Upper Egypt

 

What Can Religious Laders Do and What Do Religious Leaders Need in Order to be involved? There was a consensus that religious leaders can contribute much to the efforts to tackle the problem of HIV/AIDS. Table 2 has excerpts from one of the focus group discussions in Upper Egypt.


Table 2  
What Religious Leaders Can Do     What They Need
  P1: We can motivate youth to be adherent to tehe teachings of Islam and avoid adultery
P2: We can advice the community to treat PLWHA kindly, to help them and to treat them as people who are sick and not criminals
P3: We can ban drugs and narcotics"
P4: We can promote chastity among the whole community

However, there was a concern about how to address the subject as follows:
P5: We need to address this issue in seminars in youth clubs or the afternoon lessons; not in the Friday prayer
P6: In this case we need to collaborate with medical doctors; the medical doctors will counsel from a medical point of view and we will counsel from the religious point of view
P2: We can also participate in the hotline, services. So, a medical doctor and a religious leader can answer the questions and concerns of the people;

    P1: "We need information on ways to stop transmission of the virus. Is there a vaccine that can be taken? How I can know that the person that I am talking to is HIV positive?"
P1: people look at us as though we are angels, flour is not sold with the words 'well done', and we are human beings.
P3: the government should recognize that we are a special group of the society and we need to be satisfied financially in order to carry on our job probably.
 

 

Conclusion
Islam has always encouraged discussions of matters which will help protect health and life. Muslim men and women never felt shy to ask the Prophet (PBUH) about intimate sexual matters. The Holy Qur’an discusses reproduction and sexual health.

Love and compassion are the qualities of a good Muslim. People living with HIV/AIDS cannot be denied compassion. People PLWHA need compassion, love, and affection, in addition to social and material support. There are many sayings from the Prophet about showing love, compassion and support to people in ill health.

Thus, religious leaders can contribute to the efforts aimed at prevention of HIV/AIDS and caring for PLWHA. Religious leaders can contribute to advocacy programmes in their mosques, and through seminars and written articles. They can also be involved in the running of AIDS hotlines.

However, in order for them to play these roles, the religious leaders require the following:
• Financial empowerment
• Strategic raining programmes
• Access to information, (through seminars, information materials and audio visual aids (like posters, flyers, audio tapes, video tapes and CDs).

Acknowledgments
The authors would like to acknowledge the Africa Faith Based Forum for supporting this research. In addition, special thanks go to our partners in Egypt - Coptic Evangelical Organisation for Social Service (CEOSS) and Caritas for their moral and technical support. Furthermore, we acknowledge the contributions of our key informants, the religious leaders in Upper and Lower Egypt, who gave us the courage and wisdom to conclude this research.

References
1. UNAIDS Fact Sheet (2004); UNAIDS and WHO 2003. UNAIDS fact sheet on the AIDS epidemic in the Middle East and North Africa, accessible online at http://www.unaids.org/Unaids/EN/Geographical+area/By+Region/North_Africa_Middle_East.asp
2. Carol Jenkins (2004) “Vulnerability to HIV/AIDS in the Middle East and North Africa: A Socio-Epidemiology Overview,” Paper given at Twenty-Fifth International AIDS Conference, Satellite Meeting of Global Researchers of HIV/AIDS in the Middle East and North Africa Region, Bangkok, Thailand, July 13.
3. Carol Jenkins and David Robalino (2003), HIV/AIDS in the Middle East and North Africa: The Costs of Inaction. Washington, DC: World Bank.World Bank, AIDS Regional Update: Middle East and North Africa, “An Opportunity for Prevention: HIV/AIDS Situation in the Middle East and North Africa Region.”

* Ahmed R. A. Ragab, MD Ph.D; Mervat Mahmoud, Ph.D; and Prof. Dr. G.I. Serour, FRCOG, FRCS are at The International Islamic Centre for Population Studies and Research, Al-Azhar University; a Faith-Based Forum Partner in Egypt.

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